2021 GROUP

From the creation of the association in 2018, we had this ambition: to share a human adventure during a large family reunification.

Indeed, if families have already crossed paths because they are close geographically or during personal trips, our association wishes to offer a wider grouping during a seminar including interventions by professionals.

This would allow many informal exchanges during meals and evenings but also more specific exchanges during conferences on subjects that concern us all.

The Board of Directors is now working on the organization of this event.

The date has already been set, it's the weekend of October 30/31 and November 1, 2021, so mark your calendars!

We are now working on finding a place of reception for 70 to 100 people in a fairly central city or at least easily accessible by highway or train since we are scattered all over the country, which about fifteen families have already given us. indicated that they want to participate and that by then, other families will certainly arrive on our parents Facebook page and will also wish to join this project.

This weekend will be accessible to all families of Kool Kid children, whether or not they are members of the association, and we are doing everything we can to ensure that a preferential rate is possible for families who are members.

Thank you for relaying our calls for donations via crowdfunding, for making requests for financing assistance via your companies, your mutuals, your banks or any other means in your possibilities to help us make this weekend cheaper for you. .

You wish to help us more actively, you are welcome!

I give and I receive a tax receipt for my tax deduction of 66% within the limit of 20% of my income

The Board of Directors is now working on the organization of this event.

We are now working on finding a place of reception for 70 to 100 people in a fairly central city or at least easily accessible by highway or train since we are scattered all over the country, which about fifteen families have already given us. indicated that they want to participate and that by then, other families will certainly arrive on our parents Facebook page and will also wish to join this project.

This weekend will be accessible to all families of Kool Kid children, whether or not they are members of the association, and we are doing everything we can to ensure that a preferential rate is possible for families who are members.

During this weekend, we would like to welcome a genetics professional who can explain the syndrome and the current work allowing us to envisage the future more serenely.

The other subjects remain to be defined in connection with the families present, here are some ideas but do not hesitate to contact us to give us your opinion or tell us about yours:

  • language,

  • sleep,

  • various reception establishments for children and adults,

  • inheritance tax and life after our death,

  • future / autonomy / adult life,

  • sentimental and sexual life,

  • epilepsy

If you are a professional, you read these lines and are interested in sharing your knowledge with families, you want to get to know us, do not hesitate to contact us.

Are you a parent of Kool Kid and still hesitate to participate?

You are not alone, this hesitation was mentioned by some members during the last General Assembly. Parents like you indicated that they were probably not yet ready to participate in this type of weekend.

Many have had to change their minds after hearing from those who have already met other families, regardless of the setting or age of the children, because all said they found it very positive for themselves, their kools kids but also the siblings and all added that they were eager to find each other.

A mother's return testimony.

"From experience, and to reassure you, during this type of grouping, we are all there because we live the same joys, pains and questions. Also, even if we do not express them in the same way, meet others people do a lot of good. We recognize ourselves, we no longer feel alone in the world. It allows us to recharge our batteries thanks to sharing. And then, we are not just talking about disabilities, they are also festive moments.

With my husband and my daughters, we made our first groupings in England (2) then at I. and P., parents of a Kool Kid wishing to meet others (2 too). Each time, everything was very simple, we felt like we were part of a new family, family of hearts and common struggles.

I remain persuaded that whatever our state of mind, our capacities to accept the handicap more or less quickly, these meetings make it possible to make a leap and to assert oneself as parents, parents of handicapped child. And this is also valid for siblings who see that other children, adolescents, and even young adults experience the same thing as them and do very well. They too can share with peers and without parents. "


We remain of course at your disposal to discuss this subject if necessary and you will find reports on past meetings on the parent pages of the WEB site. If even after all this you do not feel ready right away, it does not matter, we hope to organize other events of this type in the years to come.

© 2018 - Association Koolen De Vries France - Tous droits réservés              contact@koolendevriesfrance.org             Politique de confidentialité

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